Tia's first day of first grade!!! How cute!! Can you guess what her favorite color is? =-)
So how was the first week of school, you ask? STRESSFUL!!! Tia's teacher and aide did not have any information on her. I had written a 3 page "All about Tia" for them and I was really glad I did. One thing they did not know is that Tia will not poop in the potty so she is still in Pull-Ups at school and needs to be changed and taken to the bathroom on a schedule to pee. The aide is less than thrilled about this and has asked for a different student assignment. So, we will see how long it takes to get a different aide. I can't blame her, I don't love it either but have no idea how to get her to "go".
There was NO aide for lunch like there was supposed to be so I played lunch aide all week and had to find a sitter for Ty and Max during lunch. Now she is going to eat with a Special Needs class so she can have some help opening things and making sure she gets to the right places and has time to eat. She eats 3 things. Pasta squares (by Gerber), mac-n-cheese, and Vienna Sausages. That is what she will eat every week, all year. YUCK!!! I really hope I can convince her to broaden her horizons a bit. Hot lunch has a lot of choices but I am worried she will ask for something she doesn't like and won't eat. She does that a lot. She will ask for pizza or PB&J and I know from years of wasting food, that she won't eat it. I'm not sure if she is just asking for what she knows other kids eat (like Tyler) or what?! Sigh.
I just wish I could enroll my kids in school and that was it. But, it is so much more work, effort and stress with a child with special needs. After 4 days, the Resource teacher offered us a Skills Class (self-contained classroom) as an option for Tia instead of the regular ed. class she is in. That was frustrating. Could they give her a chance to adjust??? I am not anti special education at all but, I know that research shows children with DS are better off in a typical class with modifications. Tia is bright, she does not have behavior issues, she tries hard and there is no reason they cannot help her succeed in a regular classroom. I don't know what the next few years will bring but for now we feel strongly that Tia is in the right place. I pray, cry, stress and read as much as I can before her IEP meetings to place her in the right setting. It is hard to have someone tell you they don't think you made the best decision. I don't tell other people that they made the wrong decisions for their children! I can't imagine telling someone, "So, I noticed your son is immature for his age" or "most kids his age can jump better than that" or whatever. If I said that to a typical parent they would hit me! I don't know why people think they can point out our children's short comings. They have Down syndrome. They are not going to be age appropriate in everything. This is why Special Education services are in place to help them. OK, so to sum up, this week was hard! =-) Sorry for ranting and raving. Hopefully, this week will go better and Tia will get a new aide.