We had Max's Upper GI swallow test yesterday. He was not thrilled drinking barium but he drank enough to get results (and to poop white!) Basically, he aspirates anything thinner than pudding consistency! Not great news, but... the great news is that it is NOT structural. Meaning, it is just because of his lack oral motor control. So, the therapist recommended 2-3 months of feeding therapy and then come back to check it again. I was relieved to hear that! We are not supposed to give him any liquids. I don't know how that is possible. I meet with the pediatrician tomorrow to figure it all out. We are also upping his Prevacid for reflux.
Oh, I talked to an elderly lady while waiting in the hospital for the test. She asked me what Max's "condition" was called. I told her Down syndrome. She said, "Some of the people with Down syndrome are really pretty advanced." I agreed, of course. She told me she had seen "So You Think You Can Dance" when the young man with DS was on there. She said, "He was a bright boy. He spoke well and seemed to have a good life." I was SO thrilled that the boy on that show had been given air time. He truly did what he set out to do...change people's opinions. Way to go!!