Step 1: Fully dressed with NO water . Play for 2-3 minutes.
Step 2: Clothes off but diaper on, still NO water. Continue playtime.
Step 3: Diaper off, play a while. Then start the water. He usually freaks out as soon at it touches him, but today he did great!
Step 4: Wash body and hair while playing and singing. He whined but was still happy for the camera.
Step 5: Love on my little Max burrito!! He did amazing!!!!
WE DID IT!!!! I am SO happy he is trusting me now! I really just think he had no idea it was supposed to be fun. Now he is relaxing a little. We will continue the 5 step process for a while to help him feel more at ease. He is just so dang fun! Thanks to everyone for all the suggestions. I'm so happy to have others to ask!!!
Also, Max ate 2 meals by spoon yesterday!!! He is up to eating 8-10 oz of baby food at a time. It is awesome! Next battle will be texture. I plan to wait a few weeks for that. We have an upper GI study next Tuesday to see about his aspiration and reflux. I am so curious to see what is going on. He is still really raspy after every feeding and has a nasty cough even with the meds he is on now. My hope is that it is just reflux and not a structural issue when he swallows. Reflux can be fixed with medication. I'm not sure what they will do if it is structural.
Tia and Tyler are adjusting really well. Tia still needs her space now and then but there has been a lot of change for her to deal with. She has a new respite provider, we've had lots of company, Max's crying scares her, and daddy went out of town for a few days. She is still processing everything. Tyler is very easy going and change is not as difficult for him. So, he helps Tia by being a friend to play with. They are great kids!! Right now they are pretending to be in school. Tyler is writing his abc's and Tia is giving a lecture on manners! "You have to share Tyler, OK?" "OK" Pretty funny. I am almost surprised things are going so well. I am just trying not to feel spread too thin but give everyone some one on one time. It takes a lot of energy but it is worth it!